What is 22q11

22q11 is a syndrome that starts when a tiny part of one of your chromosomes is missing.
Because those chromosomes run throughout your body, 22q11 can affect many parts of your body and brain. When you’re born, you might have problems with your heart or your palate, and as you grow you might find you struggle with maths or have a hard time sitting still in class. In fact, there are more than 180 ways 22q11 might affect your body and your mind, which can make life trickier for you.

What we do

At 22q11 Ireland, we aim to provide lifelong support for those impacted by 22q11
We welcome and encourage families living with 22q11 Deletion Syndrome with open arms and an empathetic ear, and by working to build a holistic care model that will help 22q11 patients and their loved ones throughout their lives.


Declan’s fundraiser for Wyeth Charity Partner 22q11 Ireland

Running the London and Limerick Marathons in Consecutive weekends, 30 April 2023

Declan’s Story


I am planning to run both the London (23rd April) and Limerick (30th April) Marathons on consecutive weekends to raise much needs funds for 22q11 Ireland.

22q11 is the chosen Charity partner of Wyeth Nutrition Askeaton.

Your support will be greatly appreciated.

Thanks for taking the time to visit my JustGiving page.


Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

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