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We provide help and support for individuals and families affected by 22q11.2 deletion/DiGeorge Syndrome/V.C.F.S. Through education, research, outreach and advocacy we seek to raise awareness of this little known condition.  To this end 22q11 Ireland will work together with:
- Families affected by the 22q11.2 deletion.
- Other rare chromosome disorder groups.
- National and international organisations concerned with rare chromosome disorders.
- The medical and scientific community.
- Educational institutions.
- Government bodies.
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Why not run a marathon for 22Q11?
It’s time to start thinking about Marathons, mini or otherwise! Aine’s brother Peter whom you all know as one of our number one supporters and fundraisers has declared his intention to run the New York City Marathon in 2011. So, anyone out there game enough to join him and raise some much needed funds for 22q? We can’t let him go on his own now can we….? |
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Message from Minister Pat Carey "I welcome the launch of the website to support those people, and their families, affected by 22q11 in Ireland today. This website will provide a useful resource for those suffering from 22q11, and for their family and friends. |
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Find us on Facebook!
We've got a new Facebook page. Why not come have a look and join in the conversation? Join us on Facebook |
Volunteers Needed for Research Study For the last number of years, a team at the Royal College of Surgeons in Ireland (RCSI), headed by Prof. Kieran Murphy, has been carrying out research on learning and behaviour in individuals with 22q11.2 Deletion Syndrome. |
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The Corkman - 28th August 2008 A Charleville family has been instrumental in setting up the organisation 22q11 Ireland to raise awareness of a rare congenital abnormality in new born babies, who are affected by the condition, which is known in medical terms as DiGeorge syndrome or the Velo-Cardio Facial Syndrome, 22q11.2 deletion. Read more...
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