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We provide help and support for individuals and families affected by 22q11.2 deletion/DiGeorge Syndrome/V.C.F.S. Through education, research, outreach and advocacy we seek to raise awareness of this little known condition. To this end 22q11 Ireland will work together with: - Families affected by the 22q11.2 deletion.
- Other rare chromosome disorder groups.
- National and international organisations concerned with rare chromosome disorders.
- The medical and scientific community.
- Educational institutions.
- Government bodies.
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22q11 Ireland Conference 2010
We hope that you enjoyed the conference and got lots of helpful information! Many thanks to all the speakers who were wonderful and gave us lots to think about! It was great to see everyone again and we're looking forward to seeing some of you in the Freirs on Saturday 7th August 2010 for our Family Day!! Three cheers for Karina and Eamonn!!!
We would welcome any feedback you may have on the conference so if you have anything you'd like to say about the day or have any ideas for future events please email us, we'd love to hear from you!
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Find us on Facebook!
We've got a Facebook page. Why not come have a look and join in the conversation? Join us on Facebook |
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FAMILY DAY OUT 7th August 2010 The Freir's Rosegreen, Cashel, Co. Tipperary. From 1 p.m. to 6 p.m. Bouncy Castle Novelty Races Soccer Match Lunch Visit to Rock of Cashel with our very own tour guide Eamonn!! If you are interested in coming along please email Karina & Eamonn with numbers etc..
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Looking forward to seeing you on the 7th - it should be a great day! |
MaxAppeal UK International Conference29th to 31st July 2010 Ricoh Arena, Coventry, UK For more information visit: http://www.maxappeal.org.uk/events-news.asp?eventid=13 |
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2010 Golf Classic Ken Doherty invites you to 22q11 Ireland's Golf Classic at South County Golf Club, Brittas, Co. Dublin. on Wednesday, 15th September 2010. |
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Message from Minister Pat Carey"I welcome the launch of the website to support those people, and their families, affected by 22q11 in Ireland today. This website will provide a useful resource for those suffering from 22q11, and for their family and friends. |
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