Meeting on 19 January 2014

Hi 22q families,

 

Happy New Year to one and all! 

 

Starting from this year there will be 4 quarterly meetings where the committee will hold meetings which will then be followed by 'social' time and a stay-over for those who wish to do so (the last one proved to be a great success!)

 

The first meeting is taking place Sat 18th January in the Radisson Blu Hotel in Athlone. Athlone was chosen because of it's central location and to give everyone a chance of attending. Those who cannot make this one will have the opportunity to attend any of the other three.

 

The agenda will look something like this.

 

11am - 2pm approx for the committee meeting. People are welcome to attend this at any time as long as we have prior knowledge of numbers. (If you can't make the meeting and would like to come along for an hour or two in the afternoon / evening then please do so, there are no hard-and-fast rules for attending).

 

Being at a meeting gives an insight into what goes on behind the scenes and also affords an opportunity to input with ideas about how we can move things forward for 22q Ireland. All views and ideas are respected and indeed welcome. We are our own best resource for developing our organisation and getting where it is we want to go. We are still entirely voluntary and with the exception of our two fab volunteers Grainne and Ellen, made up entirely of parents and families. 22q 11 Ireland will only ever be as good as it's members and our achievements are in direct proportion to the time, effort and goodwill of us all. 

 

 

Your involvement, small, medium or large is therefore very important to the growth and development of the group. As chair of the group I am well aware that there are some decisions that are taken without consensus of the majority. This is unavoidable to a great extent but there is however no major decision made without consulting committee members and every decision made is done so in the best interests of those we are trying to help - our children.

 

Anyone can ask to join the committee and again everyone is welcome to put forward their names. 

 

2013 was a big year for us. Hosting the International Conference was a major achievement for such a small group such as ours and had been our focus for a number of years. It is time now to re-group and develop a strategy for next steps. These are ours to decide and whatever needs to be done needs to be discussed. Nothing happens without action. The conference last year would not have happened but for the tremendous and amazing fundraising that went on, parents, families and friends salute yourselves for the enormous effort - you rock! 

 

There are lots of things happening and lots more that can happen. Please come along on the 18th if you can and have your say, everyone can contribute in some way to our continued success.

 

Warm and best wishes to you all.

 

Anne 

 

Call us: Anne @ 087 7412856

Registration No. CHY17647

Ireland's National charity for children and adults diagnosed with 22q11.2 Deletion Syndrome. DiGeorge Syndrome and VCFS.

© 2017 by 22q11 Ireland 

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