Irish Centre for Autism and Neurodvelopmental Research (ICAN) in National University of Ireland, Galway (NUIG) Research Project
Dr. Arlene Mannion a researcher at the Irish Centre for Autism and Neurodvelopmental Research (ICAN) in National University of Ireland, Galway (NUI Galway) along with her colleague, Dr. Geraldine Leader and a psychology student, Rebecca Gilligan are conducting a study on co-occurring problems in children and adolescents with 22q11.2 deletion syndrome.
They want to look at sleep problems, behaviour problems and any tummy (gastrointestinal) symptoms in children and teens aged 3 to 18 with 22qDS.
They are hoping to understand a bit more about how the these problems might be connected and if they are affecting or interfering with the quality of life of children with 22qDS. Even if your child does not have these problems you can still take part as any information that can be provided can help with understanding why some children get these symptoms and some don't.
If you would like to take part in the study it is an online questionnaire and you can do it by clicking on the link below. If you have any questions about the study or want to know more the contact details for the researchers are provided.