We are delighted to announce that Anne Lawlor Chair of 22q11 Ireland received  the 2017 Rare Champion of Hope award for International Advocacy.

Hundreds of individuals and organizations worldwide were nominated by their peers to receive the RARE Champion of Hope award for their notable efforts in rare disease advocacy, science, collaborative sciences, and medical care and treatment. From the extraordinary list of nominees, esteemed panelists selected the recipients to be honored as RARE Champions of Hope.

The panelists said of Anne

"Anne is a founding member of the 22q11 Ireland Support Group. The group, set up in 2007 supports families affected by 22q deletion syndrome and strives for the improvement of services for those affected 22qDS. In her leadership position Anne is a driver of real change. She networks extensively with local, national and international researchers, clinicians and mental healthcare professionals. Anne is recognized for her ability to draw people together and is well known both at home and abroad as a true rare disease advocate. Dedicated to raising awareness of 22qDS as a poorly understood and under-recognized condition, Anne completed a Masters in Management of Community and Voluntary Groups and works in a voluntary capacity with 22q 11 Ireland. She lives in Dublin with her daughter Áine, aged 33, who was diagnosed with 22qDS at age 15."



The committee and families supported by 22q11 Ireland would like to congratulate Anne as we all know how hard she has worked for this. 


Anne has asked us to pass on her thanks to Everyone involved in Global Genes, her fellow recipients and Dr. Helen Malone of Trinity College Dublin who nominated her for the award.

Congratulations Anne!!!

Call us: Anne @ 087 7412856

Registration No. CHY17647

Ireland's National charity for children and adults diagnosed with 22q11.2 Deletion Syndrome. DiGeorge Syndrome and VCFS.

© 2017 by 22q11 Ireland 

Happy to share so just get in touch



ce for you to tell a story and let your users know a little more about you.