22q Young Experts by Experience Panel (YEEP): About Niamh

About Niamh and 22q11

Hello, my name is Niamh. I am 27 years of age. I have a great family who support me and a great boyfriend who supports me too. I didn’t like 22q11 at the start but then I said life is too short so if people don’t like you for you, well then they are missing out!


I live with my mam and my dog Prince. Sadly and unexpectedly my Daddy passed away this year, we were all very sad. I also have a boyfriend who I can my best friend. We are together for four years now. I recently started a course, it’s online at the moment like everyone else’s. I go in 2 days a week and it will be 3 days a week when we get our new building. I have made two new friends already on the course, one is Irish and one is Chinese, they are lovely people and kind.

My hobbies are online shopping, even before Covid 19 came to the world! I love technology. I am hoping one day that I will have a job and a car and a family of my own. I love to go on a walk with my headphone to listen to music that calms me down.”