Medical Organisations: | The Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
An international not-for-profit, self-help organization dedicated to providing support and information to individuals who are affected by Velo-Cardio-Facial syndrome, their families, physicians and other practitioners. |  | The VCFS Centre The VCFS program at the center is a full-time, comprehensive program that manages infants, children, and adults with VCFS. They have their own suite of offices in the hospital dedicated only to VCFS, and they also
have extensive research facilities dedicated to VCFS. They have 30 medical and scientific specialists from more than 20 separate disciplines who are full-time employees of the institution. Because 90% of patients come
from more than 500 miles away from our Center, they have a unique distance are program devoted to VCFS only where they interact with local health care providers to prescribe courses of management for individuals with VCFS and they also use skype and other live video programs to interact with patients from all over the world. With patients from every continent except Antarctica, they have also treated quite a few people from the UK, Italy, France and Australia. |  | CHOP
The Children's Hospital of Philadelphia. |
.  | Special Families When a family member has a disability or chronic illness, the whole family is affected. We are experienced and knowledgeable in helping families challenged by the many issues involved in having a member with a disability or chronic illness |
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| www.Cleft.ie
CLAPAI seeks to provide support through talking to new parents and providing advice on feeding, and ongoing medical care throughout the treatment. |
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 | Roller Coaster Pregnancy, having a baby and parenting can all bring you to the heights of joy and the depths of despair - all within the space of a few minutes! RollerCoaster.ie accompanies you on this exciting journey |
 | The lead state agency on disability issues, providing independent expert advice to Government on policy and practice |
 | Touch Math
TouchMath is a multisensory program that uses its signature TouchPoints to engage students of all abilities and learning styles. |
Other Support Groups: | Max appeal -
Max Appeal is run by parents for parents, carers, their families and anyone affected by the syndrome. Max Appeal are UK based.
The parents of the 22q11 Ireland Support Group would like to extend their sincere gratitude and appreciation to Julie Wooton and the Maxappeal team for the support and advice they gave over the years to Irish parents affected by the 22q11.2 deletion.
Maxappeal gave a lifeline to those families affected by the diagnoses.
Their encouragement and support in helping us in the setting up of an Irish group and especially for allowing us to use their printed material is very much appreciated and we look forward to working closely with them in the future.
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 | Australia -VCFS Foundation
The Velo Cardio Facial Syndrome Foundation Queensland was established to help and support groups of VCFS sufferers and their families, with the view to social contact, sharing information and educating people about VCFS. (PS don't forget that this group are hosting an international conference in Brisbane in November 2006). This is an Aussie language site, mate! |
 | Canada - Chromosome 22 Central
Canadian site, English language. C22C are multinational, with representation as far off as Chile! You may see some suspiciously similar wristbands on their site, but of course you can get top-quality ones from us back here in Blighty!!! |
 | CLAPA
Cleft Lip and Palate Association |
 | France - Generation 22
French support group, hosts with VCFSEF of the Strasbourg 2006 meeting. French language site. |
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