Around 12 babies are born every year with a genetic deletion syndrome called 22q11.

Áine Lawlor and her mother Anne talk to Fiona Tyrrell about life with the syndrome.

Click here to read the article in the Irish Times

Missing Genetic Pieces

This is a different kind of book, written by the mother of a child with 22q11.  She took so many notes over the years that they came together into a book.

 You can see the book, Missing Genetic Pieces, here.

Sherry has launched a website about it all at http://www.22qcentral.org/